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Home Health Kids A teenager’s take on living with cystic fibrosis

A teenager’s take on living with cystic fibrosis

What is Cystic Fibrosis?

Cystic Fibrosis, also known as mucoviscidosis, is a recessive genetic disorder that critically affects the lungs, but also the pancreas, liver and intestine. CF is caused by a genetic mutation for the protein cystic fibrosis transmembrane conductance regulator (CFTR), which regulates the components of sweat, digestive fluids and mucus in the body.

Cystic Fibrosis is most common among people of Central and Northern European ancestry. Symptoms include poor ability to gain weight, salty tasting skin, frequent chest infections, coughing and shortness of breath. It is diagnosed through newborn screening, sweat testing and genetic testing.

How You Can Help

Great Strides is the Cystic Fibrosis Foundation’s largest fundraising event. Each year more than 125,000 people participate in walks in hundreds of cities throughout the country.

This year’s Great Strides walk in Annapolis will be held on June 6 at the Navy-Marine Corps Memorial Stadium. It is an easy 1-mile walk with children’s activities, food and fun for the whole family.

Team Feets welcomes anyone who wishes to walk with them at this great event. For more information about Austin Gordon, Team Feets, and the Great Strides walk, visit the Team Feets web page or the cycstic fibrosis website

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